Skip to main content

What is going on?!



A short one, as typing is very tricky at the moment!


I'm going to try to amalgamate what 2 specialists have said to me, one yesterday and one 15+ years ago.

I have written before about the haemorrhages I had in the past, caused by 'cavernomas' in my brain. Cavernomas are essentially little clusters of veins that can bleed. 

Most people have them and if they were in your skin they would appear as little blemishes. I happen to have them in my brain!

I guess I was born with these in my brain, although they have never been picked up before on any MRI or CT scan.

I had one that bled three times when I was younger that caused my disability and I had 2 operations to remove. 

2 weeks ago, I started to experience extreme tiredness (which I put down to coding) and trouble speaking and typing (which I put down to stress).

I've spent the best part of a week in hospital and have had numerous scans on my head. I'm sure I glow with radiation now! It seems that I have had another bleed, this time near the part of the brain that deals with speech.

The specialist I saw yesterday was surprised that I haven't had an epileptic fit before, as apparently these cavernomas can irritate the nerves and cause fits, although I have never had one.

There are a few medical and confusing terms in here, I have tried to link to useful sites that can explain these, but please contact me if you have questions - I will answer them or will add it to the long list of questions that I will ask to the specialists at Queens hospital when I am summoned!

What I will do next?

- I need to wait to get a letter from the neurological specialist hospital, Queens, to get an appointment.

- I will get back to coding as much as I can, although typing is tricky at the moment, it should improve over time.

- I will get speech and language therapy to improve my speech

Labels:

Comments

  1. Unknown28 August 2020 at 14:54

    Hoping for a quick and speedy recovery.

    ReplyDelete
  2. Rubbie Kelvin28 August 2020 at 17:36

    Speedy recovery coffee, get a lotta rest and spend a lot of time with family

    ReplyDelete
  3. andrew28 August 2020 at 20:39

    Best wishes. Keep coding an writing, thanks for sharing.

    ReplyDelete
  4. Unknown8 September 2020 at 02:06

    Thanks for sharing Faye and hope Queens consultant can provide answers and a way forward. You are amazing!

    ReplyDelete

Post a Comment

Popular posts from this blog

My Beginning - JavaScript

I started out on the journey of learning to code on 18 June 2020. That morning, I woke up, checked my phone and saw a post on LinkedIn. It was written by someone I didn't know, an ex-Uber driver, and they simply expressed how glad they were that they'd learned to code. I declared to my husband then and there that I was going to learn to code. He just looked back at me sleepily. I have since found out that, by utter coincidence, the ex-Uber driver is in fact Nat Sharpe, a software engineer who's wife, Martha Sharpe, I own the book of and met within the Twitter community. I had been made redundant from my job as an Executive Assistant to the CEO of a FinTech startup due to the pandemic and I was feeling a little lost, spending all my time walking and running and just generally feeling like I should  be doing something - but I just didn't know  what. I had exactly no knowledge of coding, bar a little dabble in VBA in my previous job - again, I had mostly taught myself. I h...
Post a Comment
Read more

'People like you'

Everyone has a past, a background. How do you feel about yours? Sometimes my background creeps into my conscious thoughts when I least expect it, and anxieties that I thought I’d conquered re-emerge. Like if I need to use a keyboard extension that needs two hands to utilise. Or if I’m trying to complete a task that requires an element of maths or mathematical logic. Does that ever happen to you? Obviously your circumstances and past would be different, and other random, seemingly innocent things might bring up a long suppressed rage or anxiety in you… When I was young, I had three bleeds in my brain, close to my brain stem, essentially strokes. In that respect, I am incredibly lucky to not have been affected more, or even killed. I had brain surgery for the last two. I remember being ‘able’, before the bleeds, I was eight, nine and eleven when they happened, and they were all random and unexpected. After each one, I was left completely paralysed without movement on the left hand side o...
Read more