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What is going on?!



A short one, as typing is very tricky at the moment!


I'm going to try to amalgamate what 2 specialists have said to me, one yesterday and one 15+ years ago.

I have written before about the haemorrhages I had in the past, caused by 'cavernomas' in my brain. Cavernomas are essentially little clusters of veins that can bleed. 

Most people have them and if they were in your skin they would appear as little blemishes. I happen to have them in my brain!

I guess I was born with these in my brain, although they have never been picked up before on any MRI or CT scan.

I had one that bled three times when I was younger that caused my disability and I had 2 operations to remove. 

2 weeks ago, I started to experience extreme tiredness (which I put down to coding) and trouble speaking and typing (which I put down to stress).

I've spent the best part of a week in hospital and have had numerous scans on my head. I'm sure I glow with radiation now! It seems that I have had another bleed, this time near the part of the brain that deals with speech.

The specialist I saw yesterday was surprised that I haven't had an epileptic fit before, as apparently these cavernomas can irritate the nerves and cause fits, although I have never had one.

There are a few medical and confusing terms in here, I have tried to link to useful sites that can explain these, but please contact me if you have questions - I will answer them or will add it to the long list of questions that I will ask to the specialists at Queens hospital when I am summoned!

What I will do next?

- I need to wait to get a letter from the neurological specialist hospital, Queens, to get an appointment.

- I will get back to coding as much as I can, although typing is tricky at the moment, it should improve over time.

- I will get speech and language therapy to improve my speech

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Comments

  1. Unknown28 August 2020 at 14:54

    Hoping for a quick and speedy recovery.

    ReplyDelete
  2. Rubbie Kelvin28 August 2020 at 17:36

    Speedy recovery coffee, get a lotta rest and spend a lot of time with family

    ReplyDelete
  3. andrew28 August 2020 at 20:39

    Best wishes. Keep coding an writing, thanks for sharing.

    ReplyDelete
  4. Unknown8 September 2020 at 02:06

    Thanks for sharing Faye and hope Queens consultant can provide answers and a way forward. You are amazing!

    ReplyDelete

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